We were finally paroled (er... discharged) from the hospital yesterday afternoon, and it feels good to be home. It felt even better to sleep with the lights off last night... in my own bed. I'm sure Charlotta felt the same.
As arduous as the EEG monitoring was, I'm so glad we did it. I had a good talk with the nurse just before we left the hospital, and she said that they had gotten a lot of good data about Charlotta's seizures. When the doctor has a chance to review and analyze the recordings, it should provide us with some insight as to how best to further treat Charlotta seizures and what some good options might be. It looks like brain surgery might still be on the table, but she also told me more about another option called the Vagus Nerve Simulator (VNS). The VNS is a sort of pace-maker that gets implanted just under the collar bone and is attached to the vagal nerve, which is a 'super-highway' to the brain. The VNS sends out electrical impulses every couple of minutes, and this has been shown to decrease seizures in some patients. The doctors don't know quite how or why it works, and it doesn't work on every one the same way, but it might be worth a try.
We'll know more in a few weeks when we have a follow-up visit with the doctor. For now, we're going to enjoy our freedom and a weekend trip to Whistler!
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